Atlantic Ehlers-Danlos Syndrome Society

Announced yesterday during National Pain Awareness Week in Canada. National Pain Awareness Week allows us to collectively raise awareness and understanding of an often invisible chronic condition that millions of Canadians face. Our priority is to ensure that those who live with chronic pain receive the support that they need to lead full lives, so that they are able to work and fully participate in the activities that they enjoy. I am confident that the work of the Canadian... Pain Task Force and initiatives announced today will help make a positive difference. The Honourable Patty Hajdu Minister of Health https://www.canada.ca//government-of-canada-takes-action-t

Research is urgently needed to find more effective treatments! Dysautonomia International has been the leader in advocating for more POTS research, funding over... $1.7M in POTS research to date through our POTS Research Fund, including the largest international registry, the most in-depth immunological studies, and the first immunotherapy clinical trial in POTS. Improve the lives of people with POTS by contributing to research today: CurePOTS.org. #DysautonomiaAwarenessMonth

The Allied Health Professionals ECHO program is a free program for Physical Therapists, Podiatrists, Clinical Psychologists, Occupational Therapists, Speech and... Language Therapists, Dieticians, and Nutritionists, from anywhere in the world. The program consists of eight case-based interactive sessions delivered virtually via the zoom platform from the UK. We will use a regional and system approach to cover the assessment and management of the Ehlers-Danlos syndromes and hypermobility spectrum disorders and associated symptoms and conditions including sessions on: - Diagnosis, assessment, and management principles - Pain mechanisms and non-pharmacological management - Fatigue mechanisms and non-pharmacological management - Cardiac dysautonomia - MCADS - Gastrointestinal dysfunction - Urogenital dysfunction - Mental health: anxiety, depression, panic, ASD, and ADHD - Headache and migraine - Cervico cranial instability/Chiari - TMJ, dental, and facial pain Register today at https://ehlers-danlos-society.regfox.com/allied-health-prof

October is Dysautonomia Awareness month! Many with EDS or HSD also have a diagnosis of one of the dysautonomias. Check out Dysautonomia International for more information and how you can get involved involved in #MakeNoiseForTurquoise https://www.facebook.com/DysautonomiaInternational/about

Nova Scotia Health Authority offers a wide variety of courses, workshops and events across the province to help Nova Scotians improve their health and wellness. 'Your Way To Wellness' is a 6-week workshop now offered online that helps adults with ongoing health conditions take action and live a healthier life. https://nvite.com/novascotia/a1d25... For a complete schedule of offerings, go to: https://nvite.com/community/novascotia#events

Education and recognition of the complexities of the Ehlers-Danlos syndromes and hypermobility spectrum disorders is vital among health professionals. Understan...ding how an individual could be impacted by the different subtypes of EDS and by HSD, could mean that situations of need are taken seriously, investigations happen sooner, and surgeries, wound care, and medications are considered, safely. Our printable wallet cards can be shown to emergency responders and healthcare teams, to provide information for emergencies to help ensure patient safety. Cards specific to HSD and translated wallet cards will be available soon! Download at: https://bit.ly/3mvT5y4 #WorldPatientSafetyDay

Dr. Chopra discusses the causes of pain in EDS and HSD, and how conditions such as PoTS, Mast Cell, gastrointestinal, and neurological systems play into it. Be...ginning with an overview of pain experienced by body system, including the importance of correct posture in EDS and HSD, and more than 25 reasons for headaches, Dr. Chopra also discusses the principles behind physiotherapy. The pros and cons of different medications are also discussed. Watch now: https://youtu.be/VrxoA3uh-FM #painawarenessmonth

Happy Canada Day! If you're looking for a few ideas to celebrate our Nation's birthday virtually, start here: https://www.canada.ca//canadian-/campaigns/canada-day.html

Join our LGBTQIA+ virtual online support group today Sunday, June 28 at 12:00 pm Eastern Time (US and Canada) / 5:00pm BST (UK) - use thetimezoneconvertor.com to find the time of the meeting in your timezone. Find the zoom details for today's group at: https://bit.ly/2CBOgRc

Dr. John Mitakides is an expert in the field of craniofacial pain and TMJ disorder, with special focus on craniofacial pain and dental manifestations in individ...uals with Ehlers-Danlos syndrome. Dr. Mitakides joined us at the 2019 Global Learning Conference in Nashville, discussing EDS and its oral manifestations. Watch now: https://youtu.be/tJ9QwRkv1pU See more

To all the fathers, and father-figures out there,

If you are unable to attend in-person events due to chronic illness or disability, there are many other ways to show support and make a difference. https://themighty.com//support-black-lives-matter-cant-p/