Canadian Skin Patient Alliance
223 Colonnade Rd S, unit 111 K2E 7K3 Ottawa, ON, Canada

Our new infographic illustrates what efficient #cancercare is for All.Can and how greater efficiency can be achieved across the entire care pathway for the benefit of patients and society. bit.ly/39utdO4

Partagez votre expérience avec nous afin de favoriser l'accès à de nouveaux médicaments pour la dermatite atopique (eczéma) modérée à sévère. Pour aider à soutenir l'accès des patients aux nouveaux médicaments oraux pour la dermatite atopique modérée à sévère, l'ACPD et Eczéma Québec préparent une soumission de commentaires au nom des patients et des soignants sur leurs expériences avec la dermatite atopique et les traitements qu'ils ont essayés, y compris les nouveaux médica...ments oraux. Ces données seront envoyées aux décideurs chargés de conseiller les régimes d'assurance-médicaments publics. Canada. Parfois, les régimes d'assurance-médicaments privés prennent connaissance de ces conseils avant de décider s'ils doivent également couvrir ce médicament. Veuillez prendre 15 à 20 minutes pour nous faire part de vos expériences en remplissant notre enquête. http://ow.ly/j7Kk50EbFvb

Share your experiences with us to help support access to new drugs for moderate to severe atopic dermatitis (eczema)! To help support patient access to new oral medicines for moderate to severe atopic dermatitis, the CSPA and Eczéma Québec are preparing a patient input submission about patients' and caregivers' experiences with atopic dermatitis and treatments they have tried, including new oral drugs. This input will be sent to decision-makers responsible for advising gove...rnment drug plans about whether they should cover this drug for patients across Canada. Sometimes, private drug plans look at this advice before deciding whether to cover it as well. Please take 15-20 minutes to tell us about your experiences by filling out our survey. https://www.surveymonkey.com/r/JAKi-ENG

It is Patient Safety Awareness week - a week aimed at growing awareness about patient safety! #PSAW21 Find out more about the work being done: http://ow.ly/7fld50E2i3P

The latest issue of Canadian Skin Magazine is out and it has a new look! Check it out and let us know what you think! http://ow.ly/mXca50E1zhV

The CSPA is pleased to be attending the #ISSS2021 starting tomorrow- working together to #CloseTheGap in quality of life between Indigenous and non-Indigenous Canadians.

Join our Affiliate Member, Stevens-Johnson Syndrome Canada for their virtual Town Hall on February 25th. Details are in the Attached

As we take some time to spend with our families, we hope that you are able to spend time with the people who mean the most to you. Our offices are closed today and will reopen tomorrow. #FamilyDay

Wishing you all a day filled with love! #HappyValentinesDay

Today is #WorldCancerDay. DYK that at least one third of cancers are preventable? Check out our website to find out steps you can take that can prevent cancers that affect the skin! http://ow.ly/6Rg950Drg0U

I often notice people whispering and staring at me because I have a skin condition. The truth is that I would rather you just ask me about it than talk behind my back. I didn't cause my skin condition and I have nothing to be ashamed or embarrassed about. Find out more https://bit.ly/3iSehwI #ShedTheShame2021

Some people look at me and just see my skin condition. But the truth is that my skin condition does not define who I am. I am smart, fun to be around, a good friend and have dreams and hopes just like you - I just also happen to have eczema. Find out more https://bit.ly/3iSehwI #ShedtheShame2021

Today we are proud to release our report, Scarred for Life: A National Report of Patients’ Experiences Living with Hidradenitis Suppurativa. This report is an update to our previous baseline report in 2017 and while it has shown some gains for the HS community since 2017, it also shows that there is still a lot of work to be done. In this 2020 report, the CSPA has identified 11 recommendations to healthcare providers and policy makers that will improve awareness about HS and the care and management of the disease and the lives of HS patients. Read the Report http://ow.ly/ptj350zRpFw)

Check out the Melanoma Virtual Patient Support Group being offered by our Affiliate Member @MelanomaNetwork ! http://ow.ly/veP550CobQi

November is #EczemaAwarenessMonth. Check out our affiliate The Eczema Society of Canada for activities being held to mark the month. http://ow.ly/YtBK50CiDIU

We are forever indebted to all the brave hearts who served and protected us. Those who left and never returned, those who returned and were never the same. #LestWeForget. And to those currently serving we thank you from the bottom of our hearts!

It's #NPAW2020. The #CanadianPainTaskForce just delivered its 2nd report to Health Canada, highlighting best practices and elements of an improved approach to understand, prevent, and manage #ChronicPain in Canada. https://tinyurl.com/y2wy72eu #LivingWithPain

Calling all Picassos and Rembrandts! November is Eczema Awareness month and we are calling on your creativity as we launch our Youth Art Contest. Show us how Eczema feels and you could win $150! More details and how to submit your work of art can be found here:... http://ow.ly/Eaz350CcOeM

Calling all cancer patients! @ All.CanCanada wants to hear from you about your cancer diagnosis. What went well? What did you find difficult? Participate in a 60-90-minute interview about your experience. They are especially interested in people who have been diagnosed in the last 6 months, and have been diagnosed with any of the following types of cancer: Breast, Colorectal, Lung, Melanoma, Blood cancers (e.g. myeloma) Contact: ... Tina Sahay, Lead Researcher, 416-856-4386, [email protected] Learn more about All.Can Canada: https://www.all-can.org/national-initiatives/canada/ See more