CanChild
1400 Main Street West, Room 408 L8S 1C7 Hamilton, ON, Canada

Help us understand how pain and sleep impact the mental health of kids with Cerebral Palsy! You can participate in this study entirely from your home. Kids will wear an Actigraph (small device) around their wrist and around their waist to measure their sleep and physical activity, as well as report on their pain, sleep, and mood each day for 7 days and nights.... Kids and their parents will complete a mental health interview (over the phone), and fill out online questionnaires related to mental health, pain, sleep, and energy levels. Participants will receive a $50 gift card. For more information, please contact the Child Health, Exercise and Rest (CHEaR) Lab: [email protected]

The READYorNot BBD Trial is looking for Ontario, Alberta, New Brunswick and Nova Scotia youth aged 15 to 17 with Autism, Cerebral Palsy, Epilepsy, FASD or Spina Bifida to help them study the MyREADY TransitionTM BBD App. The App was co-designed with patients and families to help youth prepare for the transition from pediatric to adult health care. For more information, email Barb Galuppi ([email protected]).

Hi everyone! Just a friendly reminder that Luke's Legacy Family Research Rounds is happening on Wednesday, March 31st at 7:00 PM ET. Dr. Penny Corkum will talk about sleep issues in children with neurodevelopmental conditions, featuring the Better Nights Better Days study. You can join via Zoom or Facebook Live! Register here: https://www.eventbrite.ca/e/lukes-legacy-family-research-ro

Are you registered for CP-NET's free webinar, "Hip Surveillance for Children with CP: Why do we do it?" It’s happening on Monday, March 29th from 12:00 to 1:00 PM EDT. As a reminder, this webinar features a presentation from pediatric orthopedic surgeon Dr. Unni Narayanan and a Q&A session with developmental pediatrician Dr. Darcy Fehlings. Register now to participate in this informative discussion and come prepared with questions. We look forward to seeing you!... https://zoom.us/webinar/register/WN_zDqEkFkiQbCFH_axShO2eg See more

Don't forget to register for the upcoming CP-NET Webinar on "Hip Surveillance for Children with CP: Why do we do it?" This informative discussion will feature a presentation from pediatric orthopedic surgeon Dr. Unni Narayanan and a Q&A with developmental pediatrician Dr. Darcy Fehlings. Register here to join via Zoom: https://zoom.us/webinar/register/WN_zDqEkFkiQbCFH_axShO2eg

Register now for the CP-NET Webinar on Patient Engagement in Research: The value and impact of genuine partnerships! Members of the Family Engagement in Research teaching team will present on what genuine patient and family engagement in research means. Five CP-NET project teams will talk about their experiences with patient engagement in research, and a young adult with CP will share his perspectives on patient engagement. You will have the opportunity to ask questions and... learn more about how to get involved as a family or patient partner! Register now: https://zoom.us/webinar/register/WN_-BPPD7ODT3izK6nR-q-asA

Remember to register for the first Canadian Transition to Adulthood Pop-Up Event! Together, let us promote the best possible health outcomes for youth and families and celebrate what we are learning and doing to help young people to develop fully, even when they are challenged by health conditions. Please click the links below for more information. We hope to see you there! https://www.childrenshealthcarecanada.ca/new-page-1

You are invited to Luke's Legacy Family Research Rounds! Join us on January 28 at 7:00 PM EST to talk about family well-being and childhood disability! Register now: http://ow.ly/J4X650Da4hv

Are you interested in partnering with researchers throughout research processes? If so, we would love to hear from YOU on how we can adapt the Family Engagement in Research course to support you in developing knowledge, confidence, and skills to form equal and impactful partnerships with researchers. We are looking for youth and young adults (age 12-25) with brain-based disabilities to participate in a study by joining us in a focus group! You will also receive a $20 gift card for participating in this study. If you would like to sign up or have questions, please contact Samantha Yimeng Dong ([email protected]).

Sign up to CanChild Today newsletter and be the first to find out! http://ow.ly/CG3550D5V03

Are you a sibling of a brother or sister with a disability? You have a voice too! We are looking for siblings who are: - 14 to 40 years old - have a sibling who is 14-21 years old with a child-onset neurodisability (for example, autism spectrum disorder, cerebral palsy, epilepsy, fetal alcohol spectrum disorder or spina bifida)... - living in Ontario Siblings participants will be asked to talk with us in an interview (by Zoom or telephone) and share photographs that describe their sibling relationship. We are offering a $20 e-gift card as a thank-you for participating in this study. For more information, please contact [email protected] or visit http://ow.ly/I01G50D5UAA.

UNICEF Canada created an infographic that explains children's rights using child-friendly language. #NationalChildDay Read the resource here: http://ow.ly/2RD550Cp77f

November 20 is #NationalChildDay! Join the conversation and share what children's rights mean to you. You can also check out the poster on how the "F-words" encourage and support families and clinicians to use a rights-based approach to therapeutic interventions. https://bit.ly/3kHoMT2

The Ontario Brain Institute will host an online public talk to discuss the roles of data sharing in accelerating research and improving the diagnosis and treatment of brain disorders. Join the virtual event to discover the current work on securing, linking, and sharing healthcare dataand to find out how you can be part of the cause! Register here: http://ow.ly/jw6C50CoAsF

"So when we see these parents at the clinic, who are we dealing with? Well, most often these are worried parents. They are worried about sleep problems for their child but also the consequences it has for themselves. They're overloaded and sleep is only one of the many domains that requires attention, it's a 24-hour job. Watch the keynote presentation of Dr. Olaf Verschuren to learn more about sleep and Cerebral Palsy and discover the ways to help children, parents, and families have better nights.

Are you interested in partnering with researchers throughout research process? If so, we would love to hear from YOU on how we can adapt the Family Engagement in Research (FER) course to support you in developing skills and building confidence to form equal and impactful partnerships with researchers. We are looking for youth and young adults (age 12-25) with brain-based disabilities (cerebral palsy, autism spectrum disorder, attention deficit hyperactivity disorder, etc.) to... participate in a study by joining us in a focus group! You will have the opportunity to provide feedback and ideas on how we can adapt a training program to help you develop skills and confidence to form and sustain impactful partnerships in research. Note: you do not need any prior research experience to participate. You will also receive a $20 gift card for participating in this study. Survey Link to Sign Up: https://is.gd/researchengagement

Did you know that November 16-22 is Digital Health Week? This year's celebration is focused on the innovation and importance of digital health tools during a pandemic. CHILD-BRIGHT will host a webinar about the READYorNot(tm) Brain-Based Disabilities (BBD) Triala project that aims to develop and evaluate an e-health application to help youth with BBD prepare for the transition from pediatric to adult health care. The webinar will discuss a unique set of strategies used to tackle the obstacles that the trial faced due to the pandemic. Register here: https://www.child-bright.ca//research-trial-during-pandemic