Cystic Fibrosis Canada
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Website: www.cysticfibrosis.ca
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Join us on February 18th to learn more about the Canadian political environment and how you can advocate for access to Trikafta. Special guests Michelle McLean,... Senior Vice President at Hill & Knowlton Canada and expert in Canada's drug-approval political environment, and Patty Tweed, a member of Cystic Fibrosis Canada’s National Advocacy Network, will explain Trikafta’s position in the system and the road ahead before the treatment is in the hands of those who need it. Send your questions in advance to [email protected]. We will also take questions live. English : 6:00-7:00pm EST Thursday February 18, 2021. For more information : https://bit.ly/3rj7NKb French : 7:30-8:30pm EST Thursday February 18, 2021. For more information : https://bit.ly/2MukQtJ
Cystic Fibrosis Canada has also received confirmation that British Columbians living with cystic fibrosis are considered part of the clinically extremely vulnerable population list and will be prioritized for Phase Three roll-out of the COVID-19 vaccine, starting in April 2021.
Are you interested in receiving regular updates on CF Canada’s advocacy work? Sign up for our advocacy ebulletin and get news delivered straight to your inbox https://bit.ly/2Y3pEZ1 NB. photo taken before COVID-19 pandemic
CALLING ALL PEOPLE LIVING WITH CF AND THEIR FAMILIES Do you live with cystic fibrosis or are you a parent, partner or caregiver to someone living with CF? If so..., we would like to hear from you about your experience with or views on Trikafta. Take our survey and include your voice in the review process for Trikafta. Survey closes January 26 https://www.surveymonkey.ca/r/trikaftacantwait See more
We’ve sought and received confirmation from the Ontario Government that Ontarians living with cystic fibrosis will be prioritized for Phase Two roll-out of the ...COVID-19 vaccine, starting in March 2021. We urge other provinces to follow suit. We’re reaching out to provincial governments again this week to again stress that people living with cystic fibrosis deserve early protection. See more
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