The CF Files

Happy 6th month lungaversary to the girl that watched her life go by on the couch. To the girl that was giving up all her dreams. To the girl that was too sick ...to get out of the house. To the girl that was ready to say goodbye, if only you knew what was in store for you. Never in a million years I thought I would ever be as happy and healthy and THRIVING as I am right now. None of this would have been possible without my donor and organ donation. Please sign up to be a donor, you could be the reason someone out there gets to keep following their dreams. Just Breathe for Elissa #justbreatheforelissa

LIFE SAVING CHANGES!!! #YesToTrikafta

October 21, 2020 will mark 1 year since the #cysticfibrosis miracle pill has been introduced into the United States . In that year I’ve watched my Canadian friends suffer and some even passed away sooner than their time, whilst our neighbours were flooding social media with praises of incredible news #proofitisworking. I’m happy that my peeps are doing amazing, even worldwide. Other countries quickly followed suit. The only ones that didn’t jump on the save some lives ...bandwagon is my country.... Canada , yer fuckin’ up budd.... A pill that was designed to correct #sadisticfibrosis at the genetic level. If there was such a thing as a miracle pill this certainly qualifies to be it. Absofuckinglutely.... I get it, we’re genetic mutants (minus tangible super powers) and it costs a fuck-tonne of money to make a that turns us into normal people. But my frustration & anger increases with each RiP I write that could have been avoided.... Le siiiigh #trikaftaNOW #trikaftaforcanada #Revolution