Cystic Fibrosis Canada
214-175 Hargrave St. R3C 3R8 Winnipeg, MB, Canada

Today Cystic Fibrosis Canada hosted the first meeting for the all party emergency access to Trikafta caucus. The creation of this caucus was an outcome of an al...l party emergency meeting with Members of Parliament and Senators on access to Trikafta. The meeting was joined by CF Get Loud and the CF Treatment Society. At today’s meeting, caucus members discussed working together to develop an all party access plan. This includes ensuring the Minister of Health holds up her commitment to fast-track Trikafta,to advocate for the broadest prescribing criteria possible for Trikafta, and for caucus members and the Minister to talk to their provincial counterparts about moving quickly to reimburse for all of those who need it. We will provide another update after our next meeting with the caucus.

A HUGE thank you

"My nephew is thriving. All these funds will go into making his life even better. He has a very bright future. That was a hard thing to say even 10 years ago with young people who had CF" - Jann Arden We are so grateful to Jann Arden for sharing her story yesterday and for CF Canada to be chosen to receive a $25,000 donation. If you missed Jann's performance you can watch it here: https://youtu.be/YlRBKfV4c8k from min 38.

We are very excited to launch CF Canada holiday e-cards. Send an e-card to a loved one today for a small donation to Cystic Fibrosis Canada. E-cards are a grea...t way to bring a smile to someone's face, during a uniquely challenging holiday season. Plus, your gift will help CF Canada continue our work to get access to life-changing medications and advance leading edge research https://bit.ly/39dRubV See more

Join us tonight to support U of Winnipeg Shinerama webinar featuring Sheralin Spring as the guest speaker. Just a $5 donation and all proceeds go to the Shine fundraising that supports our CF research!

RESCHEDULED: for this coming Tuesday, Nov 24, 6pm JDCWest - part of Shinerama at UofWinnipeg - is hosting an awareness event to fundraise for cystic fibrosis. Tell your friends and join in for a donation of $5 that supports their efforts and all funds go to CF research! Bonus - the guest speaker is Winnipeg chapter chair Sheralin Spring @UWinnipegJDCW Shinerama #Shinerama #AWorldWithoutCF #ShineForCF

The Minister of Health confirmed publicly today that an application to bring Trikafta to Canada is in progress and with a ‘priority review’ to speed the approva...l process with Health Canada. We continue to press both government & manufacturer to also undertake an ‘aligned review’ to speed up processes with other important drug review agencies. Progress is positive, however Canadians living with cystic fibrosis have already waited too long. #CFcantwait https://twitter.com/PattyHajdu/status/1328797367223644166 See more

It's Gift Card time again! We do understand this is challenging times that we are in, but one thing that we do have and that is hope. This gift card campaign is an excellent gift this year as you don’t even have to go to the store to purchase them. You can help by ordering the gift cards, and by forwarding this email onto your family and friends. Attached is the long list of dozens of retailer gift card options. Simply purchase the card in any denomination. Then, purchase u...sing cash, cheques or an e-transfer, and a percentage will be donated back to Cystic Fibrosis Canada! Consider not only purchasing cards as a Christmas gifts but look at the reloadable options. By using and reloading your cards throughout the year, you will be contributing to CF research! Order deadline is December 1st to receive the cards by December 17th still time to pop them in a Christmas card! Please drop off completed forms (with payment) to project chairs, Darcy & Linda Hodgins: 157 Lake Ridge Road Home: 204 831-0484 Darcy Cell: 204-770-7231 Linda Cell: 204-998-6671 e-transfer to: [email protected]

It’s our 60th year serving the CF community. To mark this milestone, we are asking our community to come together and help us create something for the future. ...We are creating a virtual time capsule in the form of a video montage and need your help. We want to knowif you had any advice for future generations of families impacted by cystic fibrosis, what would it be? Is it a lesson you learned? Or a perspective that helped you? Submit a video noting your advice, using our easy online tool. We will compile these videos and share them in the new year. For more information on our 60th anniversary time capsule and how to record your video for the montage, visit our website: https://bit.ly/3pBJFm2 Ready to record and submit your video? Click here: https://bit.ly/3pE29SY