Endometriosis Support

This month , yes month ! Is all about Endo and I will be sharing lots of info and way more active ! Show me your faces ! Let’s support each other and show we are not alone

How are you all doing? Well...I am off to the specialist again on Friday. I am on the 3 month Lupron injections. Then the dr at McMaster put me in another med. Unfortunately I ended being highly allergic causing my to stop the medication. It triggered my cycle to start and the pain was awful. All the while... Still on the lupron Hoping to get some answers Wish me luck See more

My favorite quote from my family doctor was, it can’t really be that bad if you are still working and doing everything you do. I told him I didn’t know I had a choice. Years in pain, tired and the many changes in me for no reason or apparent reason ... Hiding everything from someone else, pretending to be doing better than you are; until it no l onger works. No matter how strong you want to be. Then the moment comes when they tell you what you have ... You have mixed...Continue reading

Problem-focused strategies Education about endometriosis Patients could access information from reputable organizations that have demonstrated clear dedication to advancing the care of those with endometriosis. Managing work and study Patients could be honest with employers/educators about anticipated and possibly unanticipated episodes of pain. Patients could discuss modifications of work/school obligations during times of pain exacerbation, if appropriate. Social a...ctivities Patients should make a strong effort to maintain social activities (in the context of current isolation rules). Patients could use video conferencing applications, social media portals or websites to best replace their typical social activities. Social support Patients should consider connecting with their social supports by video link instead of messaging or the telephone. Patients could consider joining online endometriosis support groups. Sleep Patients should talk to their family physician/general practitioner about dysfunctional sleep or improving sleep before initiating over-the-counter treatments. Physical exercise Patients could initiate or maintain exercise based on their personal experiences and take a graduated approach to increase physical activity. Patients could access a large selection of online material to support exercise activities. Yoga Patients could initiate or maintain an at-home yoga program, guided by online material. Pelvic exercise and physiotherapy Patients could consider at-home pelvic exercises but should do so with caution and most ideally with the past/current guidance of a physiotherapist. Diet Patients could consider trialing modifications in their diet. Possible considerations include: anti-inflammatory diet; gluten-free diet; low FODMAP diet. Heat Patients could consider trialing stick-on heat patches that provide a stable temperature for long durations (812 h at a time). Cannabis Patients could consider medicinal cannabis as a potential option if they live in a location with legal access. Emotion-focused strategies Relaxation and mindfulness Patients should consider trialing relaxation, breathing exercises and mindfulness. Patients could access online material to support relaxation through websites or smartphone applications. Acceptance and commitment therapy Patients could consider self-initiating aspects of Acceptance and Commitment Therapy using online resources. Alternative methods to learn how to ‘accept’ endometriosis could be utilized. Adopting a positive attitude Patients could consider self-initiating the process of learning to adopt a positive attitude using online resources and social support (e.g. online endometriosis groups) See more

The idea of creating the endometriosis foundation of Canada started in late 2019, but became a more passionate project in early 2020 and started to move thoughts into action. Having a non profit organization that can help shed light on a disease that is far to common yet severely unheard of is one of the main goals. Creating endometriosis to become as well known as diabetes, asthma and pms to name a few. To start focusing on research, science and hopefully one day a cure is the main focus and goal. To create better treatments, management and outcomes for a disease that can debilitate your life within the blink of an eye.