Epilepsy York Region
6356 Main Street L4A 1G9 Whitchurch-Stouffville, ON, Canada

Don't miss out on your chance to win the #epilepsy5050 lottery! Next draw date is only 1 week away on November 30! Tickets are 3 for $5, $10 for 10 or 60 for $20. Get yours today at www.epilepsy5050.ca! Lottery License #12072

Brrr...it's getting chilly outside! Keep yourself warm with a Epilepsy Heart White Hooded Sweatshirt from #epilepsyshop! This stylish cotton-polyester sweatshirt comes in 6 different colours and is also available in Youth sizes. Available now at www.epilepsyshop.org! And don't forget to use code 011 for a 15% discount and to support Epilepsy York Region!

The next draw date for the #epilepsy5050 lottery is on November 30. Get your tickets today at www.epilepsy5050.ca! Lottery license #12072

How Kira Helps in an Emergency: Prior to her brain surgery for epilepsy, Amanda was having so many generalized seizures that the local paramedics soon became ve...ry familiar with our address. Many people living with epilepsy may experience a generalized (tonic clonic or convulsive) seizure, and recover from it naturally on their own, regaining consciousness within a few minutes. Amanda, however, has a history of going into status. Epilepsy Ontario defines this state as such: Status Epilepticus is considered a medical emergency. Immediate medical care is required. Most seizures run their course and end naturally on their own within seconds or a few minutes. Status epilepticus is a seizure that lasts for 30 minutes or longer, or when seizures repeat without recovery in between. Aug 8, 2011 Status Epilepticus Epilepsy Ontario After 5 minutes of continuous seizing, it is recommended that IV doses of emergency medications be delivered by a doctor at the hospital. As a general rule, if the person is still actively seizing at this point, the condition is considered status epilepticus and medical intervention is necessary to stop the seizures. Although Amanda’s surgery decreased the frequency of her generalized seizures, there have still been a few. Despite the surgery, medications and VNS therapy, when her daily seizures occur in clusters they may develop into a generalized seizure, and for Amanda that could be dangerous or even fatal. Safety precautions were necessary for independent living. In preparation for training her dog how to activate an emergency button to summon help, Amanda taught Kira to practice on a Staples That was easy button. The practice button. Amanda’s brother, Xander Robar who owns and operates OnSwitch IT, built an emergency button that Kira has now learned to activate whenever she sees that Amanda has collapsed and requires outside help. Xander's OnSwitch Emergency button. Amanda regularly practices pretending to go into a generalized seizure so that Kira knows exactly what to do. The dog recognizes the emergency and presses the button, setting off a series of pre-recorded messages to a list of emergency contacts to let them know that Amanda needs help. The messages will continue to cycle through the list of contacts until someone acknowledges that they are able to help. At that point they can get to Amanda and assist her by administering emergency medication and calling 911 if the seizure persists. We are so grateful to Xander for his use of technology to allow Amanda to live an independent life. See video for a demonstration of how Kira responds to a generalized seizure. *Amanda signals Kira that a seizure is beginning; Kira comes over to lick Amanda to abort the seizure. When Amanda fall unconscious to the floor, Kira runs to press the emergency button. https://youtu.be/bL6VVxc9GN8

Mark your calendars! We are back with our Facebook Live Webinar series and this time, we're tackling the topic of disclosure. Disclosure is often a difficult ...choice for people with invisible conditions like epilepsy to make. Who do I disclose my disability to? What are the consequences, if any, of disclosure? Are there any laws to help me in this regard? How do I disclose and when? These are just some of the questions that will be explored in this informative panel discussion followed by a live Q&A that offers three distinct points of view from a job seeker, a recruiter, and a lawyer. Epilepsy Toronto’s Employment Services Manager, Carter Hammett, moderates this Facebook Live event, which will include an interactive Q&A with the panel. Join him at 2 pm on Thursday, November 5th right here on our Facebook page. For more information about the webinar and our panellists, visit: https://epilepsytoronto.org/.../disclosure-dilemma-webinar/

He gave her a second chance at life': Epilepsy doctor remembered for his skills, kindness https://thestarphoenix.com//he-gave-her-a-second-chance-at

Epilepsy Ottawa will be hosting a webinar on Epilepsy Genetics with Dr Jim Eubanks on Thursday November 26th. See their website for details https://epilepsyottawa.ca/prog/public-information-meetings/

Boxer wants children with epilepsy to know they can turn negative experiences into positive ones. He has had his share of battles inside and outside of the ri...ng. Tabrizi says those battles made him stronger and helped shape him into who he is today. https://epilepsyontario.org/boxer-wants-children-with-epil/

Only 1 week left till the Oct 31 draw date for the #epilepsy5050 lottery in support of epilepsy agencies across Ontario! Tickets are 3 for $5, 10 for $10 or 60 for $20. Get yours NOW at www.epilepsy5050.ca! Lottery license #12072

The Krembil Brain Institute at the University Health Network is offering another great virtual workshop for patients & caregivers on October 28, "Managing Caregiver Stress: Strategies to help you take care of yourself". Register at https://bit.ly/UHN-EES-Register

There are times when people with epilepsy die without warning and no cause is found. This is known as Sudden Unexpected Death in Epilepsy or SUDEP. The risk ...is low but real. And although it’s a difficult issue to face, it’s important to consider when making lifestyle choices, so you can lower your risk of SUDEP.- www.MakingSenseOfSUDEP.org Today is SUDEP Awareness day. Did you know that approximately one out of every 1000 people who have epilepsy die from SUDEP every year? Last year Disney actor Cameron Boyce lost his life to SUDEP, bringing further awareness of the condition into the news. The cause of SUDEP is unknown, but researchers continue to investigate the connection between seizures and their effect on cardiac issues and breathing. The condition shares many similarities with SIDS (Sudden Infant Death Syndrome.) Risk factors for SUDEP include having frequent generalized seizures, particularly when they occur at night. Males are more prone to SUDEP, as are people who have had epilepsy for more than 15 years and those who developed epilepsy before the age of 16. It is important to be educated about SUDEP and to minimize your risks by seeing your neurologist regularly, taking medications on time, getting enough sleep, avoiding alcohol and other seizure triggers and making sure your network of family and friends are informed about your epilepsy and aware of what to do when you have a seizure. If medications are not keeping your seizures under control, look into alternative treatments to achieve the best possible seizure-control. Amanda’s neurologist has told her that she is at risk for SUDEP. Stay tuned for a post about how her seizure-response service dog helps in the event of an emergency! For further information on SUDEP you might visit the following websites: www.dannydid.org https://www.epilepsy.ca/sudep.html https://www.epilepsy.com/learn/early-death-and-sudep/sudep SUDEP.org SUDEPAware.org https://www.sudep.news/about-sudep

Proceeds of the monthly #epilepsy5050 lottery help epilepsy agencies across Ontario provide education, advocacy, information and support services to almost 95,000 people living with epilepsy and their families. Get tickets today at www.epilepsy5050.ca for your chance to win! Thank you for your support!

LESS THAN TWO WEEKS TO GO! We are so excited to show you this year’s Epilepsy Awareness and Education EXPO in the new INTERACTIVE ONLINE FORMAT! Over 80 LIVE ...ZOOM meetings with Epilepsy professionals, 2 days of seizure dog presentations, Ketogenic Diet education and demos from the Charlie Foundation, specialty group meet ups for DRAVET, VNS patients, Teen and Young Adults and more. #EADDL2020 #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney See more

Today is SUDEP ACTION DAY It shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness and raise ...funds for SUDEP research. Please watch our Conversations With Series on SUDEP. "Conversations With" - Elizabeth Donner Topic: Sudden Unexpected Death. SUDEP https://www.youtube.com/watch #SpeakUp2SaveLives

For those regions in a modified Stage 2 due to high COVID-19 transmission (including York Region) Ontario's Chief Medical Officer of Health DOES NOT RECOMMEND traditional door-to-door trick or treating for Halloween this year. This doesn't mean you can't have fun and celebrate at home with your family though! Check out EYR's Halloween video for some great ideas!

Walking for Woofs can be done ANYWHERE-- even at the beach! There are four more days left to enter the contest. Just click the snapd.at/pewdjyc to find the W...alking for Woofs event, choose to donate $10, $20 or $50 to buy your ticket, and then walk! You will want the snapd HUB app, free and easy to download. That way you can enter photos of you and your dog walking and snapd may publish them in an upcoming issue. You can also play virtual fetch with your dog, and click on "A Message from Amanda" to see a video of Amanda inviting you to participate. Do take your ticket stub to Global Pet Foods on Davis Dr. in Newmarket and turn it in for a free loot bag for your pet. You will also be entered into a contest to win a prize worth $200 at Global Pet Foods. Oh, yes, AND you will be helping Amanda raise the funds needed to train her future seizure-response dog, Cable. What more could you ask?

If YOU or an ADULT you know has Epilepsy, YOU OWE IT TO THEM (& TO YOURSELF) to visit this year’s FREE INTERACTIVE/ONLINE EXPO! REGISTER NOW epilepsyawarenessd...ay.org These are the schedules for the TWO Adult Tracks: NEWLY DIAGNOSED ADULTS & ADVANCED EDUCATION FOR ADULTS Don’t miss this opportunity to get your Epilepsy questions answered by these national experts! All of the talks will be recorded and available following the Expo, but ONLY to guests that register for the Expo.

If you are or a loved one has a CHILD with Epilepsy, YOU OWE IT TO THEM TO visit this year’s FREE INTERACTIVE/ONLINE Expo! REGISTER NOW epilepsyawarenessday.or...g Here are the schedules for our TWO Pediatric Tracks; NEWLY DIAGNOSED KIDS & ADVANCED CARE FOR KIDS #EADDL2020 #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney

Car Accidents Common With Undetected Epilepsy Subtle seizures may include brief hallucinations or deja vu https://www.medpagetoday.com/neurology/seizures/89205

Epilepsy Ontario is excited to announce that an online 50/50 raffle had an amazing first few months, and will continue to occur monthly in support of epilepsy c...are in Ontario. For the month of July, there was a lucky winner from Toronto that won an incredible $8,218! Paul Raymond, Executive Director of Epilepsy Ontario, says that EO initiated this raffle as a great way to support the programs and services that his office - in addition to the local epilepsy agencies - are currently struggling to maintain for people living with epilepsy. We hope that, initially, this raffle will help offset the number of in-person fundraising events that needed to be canceled due to Covid-19. In the longer term, we hope that it will continue to complement all of the local initiatives happening in local agencies. We always want to give supporters different options and ways of supporting us, and it’s fun for participants to win half of a provincial pot of money! Tickets for October can be purchased until October 31th at 11:55pm, with the draw and winner being announced on November 1 at 11am. The amount of the 50/50 will be determined based on the number of tickets sold. Any Ontario resident 18 years of age or older has an opportunity to purchase online raffle tickets through a secure site. Proceeds from this online 50/50 raffle will help provide education, advocacy, information, and support services to the almost 95,000 people living with epilepsy and their families in Ontario. Raffle tickets are 3 for $5, 10 for $10, and 60 for $20. Anyone interested in purchasing raffle tickets can do so by clicking visiting www.epilepsy5050.ca and all are reminded to have fun while playing responsibly. Epilepsy Ontario is the voice of epilepsy in the province. Since 1956, we have been serving the province as a registered health charity incorporated under the statutes of Ontario as a non-profit and non-governmental organization. We aim to raise public awareness and improve education through publications, conferences, outreach initiatives and our website. Epilepsy is a common disorder with over 300,000 Canadians affected and over 50 million people world wide. It is estimated 1 in 100 people in Ontario live with this disease.

When you buy a ticket for the #EPILEPSY5050 lottery you help us to continue educating the community about epilepsy. Get your tickets today at www.epilepsy5050.ca! Next draw date is October 31. Lottery license #12072

A Letter to Epilepsy. #epilepsy #epilepsyawareness #epilepsywarrior #seizures #epilepsysucks #epilepsyfighter #epilepsysupport #epilepsystrong #epilepsyadvoca...te #epileptic #seizure #seizuressuck #epilepsylife #endepilepsy #chronicillness #invisibleillness #repost #epilepsyeducation #covid #mentalhealth #cureepilepsy #anxiety #love #epilepsypositivity #seizuredisorder #disability #epilepsycanada See more

$1495!! What would YOU do with $1495 Dollars? Buy your $20 Dollar ticket to get 60 Chances to WIN!... www.epilepsy5050.ca

Even as the WHO has declared epilepsy a global burden, the psycho-social problems and comorbidities are poorly understood. According to the WHO report, nearly 1...0 per cent of the global burden of brain and mental disorders is caused by epilepsy. https://www.tribuneindia.com//epilepsy-reason-behind-menta

Have you got your tickets for the monthly #epilepsy5050 lottery? Buy some TODAY at www.epilepsy5050.ca! Don't miss out on your chance to win. Next draw date is October 31. Lottery license #12072... Thank you for your support!

HAPPY FRIDAY FRIENDS!!! This is the updated schedule for Monday, Nov 2 ONLINE! *Pacific Standard Time so plan accordingly if you are in a different time zone! T...here will be additional updates made, but this gives you a good idea of what is in store!! We are so excited to show you this year’s Epilepsy Awareness & Education EXPO in the new INTERACTIVE ONLINE FORMAT! Over 90 LIVE ZOOM meetings with Epilepsy professionals, 2 days of seizure dog presentations, Ketogenic Diet education and demos from the Charlie Foundation, specialty group meet ups for LGS, DRAVET, VNS patients, Teen and Young Adults and more. PLEASE SHARE! epilepsyawarenessday.org #EADDL2020 #epilepsyawarenessday #eaddl #freeexpo #freeepilepsyexpo #epilepsyeducation #purplepower #epilepsy #purple #heart #seizure #awareness #epilepsyawareness #staypositive #love #helpinghand #identify #journey #epilepsywarrior #epilepsystrong #seizuressuck #seizurefree #seizuredisorder #seizurealertdog #seizurelife #epileptic #fightepilepsy #supportepilepsy #epilepsymatters #sofiesjourney

Mark your calendars! We are back with our Facebook Live Webinar series and this time, we're tackling the topic of disclosure. Disclosure is often a difficult ...choice for people with invisible conditions like epilepsy to make. Who do I disclose my disability to? What are the consequences, if any, of disclosure? Are there any laws to help me in this regard? How do I disclose and when? These are just some of the questions that will be explored in this informative panel discussion followed by a live Q&A that offers three distinct points of view from a job seeker, a recruiter, and a lawyer. Epilepsy Toronto’s Employment Services Manager, Carter Hammett, moderates this Facebook Live event, which will include an interactive Q&A with the panel. Join him at 2 pm on Thursday, November 5th right here on our Facebook page. For more information about the webinar and our panellists, visit: https://epilepsytoronto.org/.../disclosure-dilemma-webinar/