Little Wonders Event Management

Over $2100 in value of items to bid on! Share this event and tag us for your chance to win a $20 item credit (I’ll pay $20 towards your bids). RSVP to participate. Proceeds will be going to the Little Wonders Family Program and Ronald McDonald House Charities Saskatchewan. Winner of the item credit will be notified April 9th. https://fb.me/e/7rJdgWUVs

Introducing the April Little Wonder (and birthday boy today ), Rory. Here is the Martens Families’ story, as shared by Rory’s Mom Kendall. In July of 2017, at the age of 3 months, Rory was diagnosed with a very severe & rare seizure disorder called infantile spasms or also known as West Syndrome. This disorder causes high spikes in the brain waves followed by flat periods. This causes many spasm like seizures and makes it hard for a child to develop with all of the chaos ...going on in the brain. Infantile spasms can also be difficult to treat, which has been the case with Rory. He's has been on approximately 11 different types of medication as well as the keto diet and still hasn't found full relief. Rory has been followed at Jim Pattison Children's Hospital Foundation in Saskatoon and also went for a second opinion to Calgary’s Children’s Hospital to see a neurologist who specialized in infantile spasms. He reassured us that what we were doing with our neurologist here was the right course of treatments. Rory has also been taking ABM lessons in Saskatoon at Body in Mind Therapies - Massage and Movement Centre and we have noticed improvement in Rory's development. He also had the opportunity to go to Toronto to see Judith Dack (Uptown Studio), an ABM practioner and did very well with her. Rory is also followed by genetics team in hopes to find the cause of Rory's condition. To date, there is no known cause for Rory's condition however they recently ran a full genome test and there are 2 variants of unknown significance which will be studied further. In April of 2020 Rory had his follow up MRI and the results from it were not ideal. Rory has atrophy to his cerebrum & atrophy to the white matter in the cerebellum. We are uncertain if this is related to his condition or to medications and will be monitoring it closely. Throughout his journey, Rory lost the ability to eat by mouth because he was silently aspirating. Initially he was fed via an NG tube, which went through his nose down into his stomach. In May 2019 we decided that it was time to get rid of the NG tube from Rory’s face as his skin integrity was getting bad. As a result, he had his G-tube surgically inserted. Rory is exclusively G-tube feed & we make him a blended diet. We do offer him tastes to keep practicing in hopes he may eat by mouth one day. Our little man has preserved through all these obstacles with very minimal tears, he is always smiling & laughing no matter what he endures. He truly is our warrior & such a fighter! To follow along with Rory’s journey, please follow Rory Martens and His Journey on Facebook, and martens_k on Instagram. Thank you to Rory’s family for sharing their story to spread awareness, information, and connect with other families

To all of the children out there fighting big battles, you are all superheroes _________________________________ #littlewondersfamilyprogram #littlewondersyxe #superhero #smallchildrenbigbattles #yxe #saskatoon #sk #sask #saskatchewan

Updated! Thanks to those that have messaged about adding new info. I’m trying to create a post that is as full and complete as possible each month to spread awareness, and your feedback is so appreciated If there are any Awareness Days missing from this list, please add them in the comments section below and I’ll ensure those days are mentioned in our feed, and that the calendar is modified for next year. ____________________________ #yxe #saskatoon #sask #sk #saskatchewan #ibsawareness #rosaceaawarenessmonth #nationaloralhealthmonth #autismawareness #loganbouleteffect #weargreenday #nationalorganandtissuedonorawareness #immunizationawareness #aprilhealthpromotiondays #hemophiliaawareness #infertilityawareness