Multiple Sclerosis West Island
105-1255 Trans Canada Hwy H9P 2V4 Dorval, QC, Canada

Join us for our next NeuroSask session Thursday May 6th. Active portion starts at 2:00pm Saskatchewan time with our connect session to follow at 2:30. Our connect guest will be Dr. Katherine Knox to talk symptom management: neurogenic bowel and bladder. Join Zoom Meeting https://us02web.zoom.us/j/83006055096 ... Meeting ID: 830 0605 5096 Passcode: 792351

https://www.facebook.com/events/536663583880275

Our country prides itself on its publicly funded health care system. The Canada Health Act says that the government must provide reasonable access to medically... necessary services without paying out of pocket. The Act clearly states that the coverage provided to its citizens must be comprehensive, universal, accessible and portable. Unfortunately, in the case of the most prevalent neurological condition affecting young adults in our country, multiple sclerosis, these standards are not met. Currently, in Canada, the sad truth is that although we have a large number of MS treatments approved by Health Canada, many Canadians only have access to a select number of these treatments. Our access to DMTs is determined by where we live, what kind of insurance we have, or how much money we make ad not by appropriateness and effectiveness. As a fellow Canadian living with MS, our access to the full spectrum of medications is not comprehensive, certainly, not universal and most definitely not portable. We need to do better, and this priority can help us get there. Julie lives with MS and holds a volunteer position as the co-chair of the Young Adults with MS Committee at the MS Society. Today we’re kicking off #MSAwarenessMonth with our annual Day on the Hill initiative. All week, our staff and volunteers will speak to parliamentarians to create change for Canadians affected by MS. Due to the global pandemic, these important meetings will take place online. Throughout the meetings our team has with parliamentarians and policy staff, we have the opportunity to share the stories of the challenges Canadians affected by MS face, like Julie, and discuss recommendations to improve their lives. We hope to see more young adults, like Julie, participating in MS advocacy efforts and #TakeActionForMS. What would you like the government to action on?

https://blog.mssociety.ca//millennials-with-ms-trish-yeung/

Les personnes atteintes de SP souhaitent travailler, mais peinent parfois à conserver leur emploi. Comme plus de 60 % des gens aux prises avec la SP se retrouve...nt tôt ou tard au chômage. Le cadre actuel du programme de prestations de maladie de l’assurance-emploi (AE) ne répond pas aux besoins d’un trop grand nombre de Canadiens. Voilà pourquoi nous vous demandons aujourd’hui de joindre votre voix à la nôtre afin de réclamer des changements aux prestations de maladie de l’AE offertes au Canada. Joignez-vous à Sophie et appuyez le mouvement #prioriteSP en envoyant une lettre maintenant à votre député https://bit.ly/2U3i7rc

When it comes to my MS, what works for me is being open and honest about my mental health. When you’re battling a chronic disease and feel like your life as yo...u know it is being taken away, to say you’re emotionally affected is an understatement. Research has shown the link between living with MS and depression, and that’s why it’s critical for me to have strong coping skills and a loving support system. Researching lifestyle modifications and applying it to my own life enables me to take control of my health, which otherwise would be out of my hands. - Amanda, MS Society Young Adult Committee member As young adults try to manage MS, along with other aspects of life, prioritizing the importance of informed lifestyle decisions that can alleviate the impact of MS and minimize its progression is critical. On Friday, November 27 from 4:30-5:30 pm ET, join the MS Society’s Young Adult Committee in welcoming an expert panel of speakers who will provide an overview of relevant research in lifestyle modification and tips on how to apply them. Topics will include: exercise and physical activity, mental health, diet and nutrition, and research, and the panel presentation will be followed by a Q&A session. Register for the session here: https://bit.ly/388cyQF. Following the panel, there will be a Young Adult Social Engagement Session, where you can connect with other young adults from across Canada, talk about the information presented in the panel, and discuss what’s important to young adults affected by MS.

Every five minutes, someone, somewhere in the world is diagnosed with MS. In Canada, an estimated 11 people are diagnosed with the disease each day. Now more t...han ever, Canadians need the support and connection to health charities like the MS Society in this uncertain world. Immediate action must be taken to support the tens of thousands of Canadians affected by MS. Health charities are reporting a devastating reduction in revenue, which threatens their ability to support those most vulnerable during the pandemic while continuing to sustain the critical research they fund. In addition to supporting health charities, we’re advocating for critical changes to the Employment Insurance sickness benefits program to ensure those who live with MS and want to continue working are able to. It takes less than 5 minutes to contact your Member of Parliament and ask them to #TakeActionForMS today: https://bit.ly/3mQY9wi.

Breaking News! The deadline to apply for the Disability Tax Credit (DTC), and determine eligibility for the one-time payment to persons with disabilities, has... been extended to December 31, 2020. This extension will ensure that more Canadians with disabilities have access to the one-time payment, which will help with additional expenses incurred during COVID-19. Also, being eligible for the DTC can help one access other federal, provincial, or territorial programs such as the Registered Disability Savings Plan, the Canada Workers Benefit, and the Child Disability Benefit. https://bit.ly/2HsKZqh Image description : Graphic displaying accessible symbols and the following text: "New DTC application deadline for the one-time payment: December 31, 2020"

PS j'ai la SP, en collaboration avec la Société canadienne de la SP Division du Québec, a mis sur pied une websérie mettant en vedette cinq jeunes adultes att...eints de sclérose en plaques (SP) qui discutent de leur parcours avec la SP et de leur quotidien dans une ambiance décontractée et en toute honnêteté, parfois même avec humour. Le Souper Party permettra aux jeunes adultes de se sentir compris et moins seuls et sera l’occasion pour les personnes de leur entourage de mieux saisir la réalité de ceux-ci. En raison de la pandémie de la COVID 19, le tournage de la websérie Souper Party a été reporté, mais trois épisodes seront diffusés tout au long du mois de novembre. Voici un aperçu du premier épisode, que vous pourrez visionner dans les prochains jours! Restez à l’affût!

"Confession time: I'm pregnant with my second daughter and I have MS. What does this mean? I get weird questions like: Have you spoken to your doctor? Are you a...llowed to get pregnant with your condition? Aren't you worried about your children? The irony is that I've even received these questions from my own mother. Receiving an MS diagnosis can be really scary, especially before you do any research. Just after having my first daughter, my neurologist diagnosed me with the disease. It was terrifying because I knew my world was going to change and I thought it would be for the worse. However, what I learned is that I was embraced by a community that was supportive of my new journey and understood that I still wanted to work, travel, and have a family. Through this new step in my journey, I understood that I had triggers and that stress management became essential to my overall health and well-being. I surrounded myself with co-workers who became my extended family and helped me if I needed a moment to myself. Most importantly, I began seeing a neurologist that understood that I may want the option to expand my family one day. Here I am - pregnant with my second daughter - vulnerable by sharing my journey, but stronger because of it. I hope to raise my daughters to accept people's differences and learn from them." - Janelle, diagnosed with MS in 2016.

If you could describe MS fatigue in one sentence, how would you explain it? Approximately 90% of people living with MS experience fatigue. MS fatigue can have ...a negative impact on work, family life, mental and physical health and social and recreational activities. On Friday, November 27th from 11 AM 12 PM ET, join Dr. Marcia Finlayson for an informative panel discussion on fatigue management as a part of our virtual MS Connect conference. Fatigue management is gaining more attention in the MS research community and a wider variety of approaches are being evaluated and tested for effectiveness. My panel discussion will address what we know about MS fatigue and the new directions being explored to help fatigue management. Sleep has a lot to do with fatigue, but we don’t study sleep much in this disease. I’ll be discussing how the interest in sleep is beginning to grow. - Dr. Marcia Finlayson, Queen’s University Register for Fatigue: Research Session and Q&A and the rest of our MS Connect sessions here: https://bit.ly/32frvwr.

Want to learn about cutting-edge breakthroughs in MS research? Registration is officially open for our first-ever national MS Connect Conference, taking place o...nline from November 23-28 for free! Hear from keynote speaker Dr. Jack Antel, who will be diving into how building progress in MS research is a multi-discipline effort to kick off the conference. Topics will also include: neurorehabilitation and MS, cognition, nutrition, fatigue, and more. Connect, discuss, and learn about current MS research with the MS community people living with and affected by MS, health professionals, and researchers. Register today to learn about a disease that affects more than 77,000 Canadians: https://bit.ly/383yBIf.