Parkinson's Resource Centre

Today, on Sunday, April 11, World Parkinson's Day 2021, take a moment to think about and share with others in your life what #Parkinsons and #ParkinsonsAwarenessMonth mean to you. Whether it's the impact of a diagnosis, the need for research, what it's like to live with a wide array of ever-changing symptoms, the importance of participating in programs and services that help individuals and families live well with Parkinson's disease - think about what Parkinson's disease me...ans to you. Then take a moment to share your thoughts with others, whether it's family members, friends, co-workers, or those you encounter who may not be familiar with Parkinson's disease. Help raise awareness and increase understanding to improve the lives of all those affected by Parkinson's. <3 "It begins with an appetite to discover my self-respect. To redeem the day. So the day does not go down in debt. It begins with that kind of appetite." (Leonard Cohen, 1992) Artist: Karin Åkesdotter

"In 2008, NBA star Brian Grant was diagnosed with Parkinson’s disease. Ever since, Grant has used his money, his influence, and the Brian Grant Foundation to spread awareness, to ease the suffering of those living with the illness, and to work toward finding a cure. In his new autobiography, Rebound: Soaring in the NBA, Battling Parkinson’s, and Finding What Really Matters, Grant shares his experiences of how he’s learned to thrive through healthy habits and the lessons he’s learned from a pro sports career that spanned more than a decade." https://uproxx.com//brian-grant-interview-autobiography-p/

Come be inspired by Poet Wayne Gilbert performing his "Parkinson's Poetry" live on World Parkinson's Day. Sunday, April 11 at 12 pm EDT. Live on Sunday at https://www.youtube.com/watch?v=SbRA60qBtlE

https://www.parkinsons.org.uk//were-investing-ps12m-drug-c

https://www.cbc.ca//how-tiktok-users-designed-a-better-pil

If you're looking for some day-to-day motivation and ideas, check out this resource from the Davis Phinney Foundation. https://davisphinneyfoundation.org/parkinsons-2021-living-/

Understanding mood changes and communicating with your medical team for support - an important part of addressing #parkinsonsdisease symptoms. https://www.michaeljfox.org//ask-md-mental-health-professi

Check out some of these videos and personal stories from Parkinson's UK. Featuring personal experiences and suggestions to help address mental health while living with #parkinsonsdisease https://www.youtube.com/watch https://www.youtube.com/playlist

This Friday, August 28! Register now for this FREE Online HOPE Conference Check out the wide range of topics and guest speakers and register to join this free online event! A.C. Woolnough, Author & Person with Parkinson's... Inspirational Keynote Carrie Robersone, International Community Health Services (ICHS) "Depression and Parkinson's - There is Hope!" Gloria Gottesman, Author, Person with Parkinson's "The Tell: How to Talk to Your Loved Ones about Parkinson's" Allyson Schrier, MFA, Carepartner "Zinnia TV Programs for People Living with Dementia" Bartja Wachtel, MSW, LICSW "Cultivating a Compassionate Relationship with Yourself" Dr. Karin Duncan, ND "Resilience and Caregiving" Kelly Burns "Adult Children of People with Parkinson's" Mari Cleveland "Get out of Here: How to Travel Safely in 2020" Sarah Winter, MSW, LICSW "The Need for Support"

https://davisphinneyfoundation.org/medication-protein-and-/

Check out this interactive lesson from McMaster University's Optimal Aging Portal: Six Ways to Promote Brain Health and Reduce Your Risk of Developing Dementia https://www.mcmasteroptimalaging.org//how-to-promote-brain

https://www.mcmasteroptimalaging.org//3-research-based-ben

"Did you know that dancing has been proven to improve gait and balance, reduce tremor, slow cognitive decline, and improve overall coordination and mobility in people with Parkinson’s? David Leventhal, founding teacher of Dance for PD, talks about the value of dancing and how you can participate in free dance classes."

Some tips on how to have meaningful video calls, from Baycrest The COVID-19 pandemic has severely altered the ability for people living in care facilities or living in isolation from friends and family members to connect with others. Video calls can be new and intimidating for many people but can also be a great way to stay connected while practicing physical distancing. Here are 10 tips to help get comfortable with video calls.

Looking for community, connections, and support from others who understand what it's like to live with #parkinsonsdisease? Check out this international, online resource - https://www.parkinsonscollective.org/ Read, listen, or watch what others want to share about their lived experiences and, if you want to contribute too, you're welcome to do the same. Parkinson's Collective participants are passionate about ending stigma and creating a better understanding of living with Parkinson's.

Service Canada is holding an information webinar reviewing Seniors Benefits and Credits, on July 2 at 4:40 pm eastern daylight time. PLEASE NOTE THAT THIS WEBINAR WILL NOT BE RECORDED Click on this link to register:... https://gts-ee.webex.com/gts-ee/onstage/g.php Date and time: Thursday, July 2, 2020 4:30 pm Eastern Daylight Time (Toronto, GMT-04:00) Title: CRA Seniors Benefits and Credits Presentation

Check out this wealth of excellent information from the Davis Phinney Foundation! Rigidity is a very common symptom of Parkinson's. This article includes information on what it is, how the symptom can present in different ways, the impact it can have on your daily life, how your doctor might test and treat it, and a range of ways that you can help manage your symptoms and keep moving and more flexible. https://www.davisphinneyfoundation.org//rigidity-and-park/

Check out this upcoming free webinar, hosted by Baycrest, for family caregivers, older adults, and anyone who is facing increasing challenge of social isolation and stress due to COVID-19. Resiliency Training for Family Caregivers: Standing Up to COVID-19 Build your inner strength. Exercise your resilience.... Register for a virtual opportunity to connect with Baycrest experts and learn to build resilience and coping skills while receiving practical tools to tackle the challenges of added stress, worry and isolation we are facing during this pandemic. As the weeks of physical distancing are prolonged we’re all uncertain of what the future will look like and there are a lot of fears that we are facing individually and collectively. How do we take care of ourselves and how can we help others especially when we can’t be physically present? Thursday, Jun 25, 2020 12:00 PM Eastern Time https://www.baycrestfoundation.org/Get-Involved/Webinar

https://theunsteadyhand.org/waynegilbert "Participants in this two-session online Creativity Lab will explore how words can help people with Parkinson’s and their care-partners live better with the diagnosis. Making and sharing simple poems in a supportive community will not diminish symptoms or progression of the disease but will make them more bearable and meaningful. Through creative experiments with words, we can express our anxieties, desires, dreams, anguish, joys and e...ven wonder. In making poems, we can search our suffering for deeper life-affirming possibilitiesand give them a voice. Participants will practice and develop their creative spirits and skills from sample poems, easy writing prompts, and conversation with the facilitator and one another in a supportive zoom community. The Lab will include some writing and reflecting before and after each session and a 10-minute one-on-one consultation with Wayne himself. Wayne A Gilbert was diagnosed with Parkinson’s in 2005. He is a retired teacher of English and Educational Psychology. Wayne has published two chapbooks and produced numerous videos on YouTube. He has performed and facilitated workshops for a variety of Parkinson’s groups, including the Davis Phinney Foundation. In addition, Wayne performs regularly in a variety of venues throughout the Denver Metro area in Colorado, often with improvising musicians. He is also a founder/dancer of Reconnect with Your Body, a Dance for PD affiliated group sponsored by Art as Action Dance Company. Wayne is a beloved IPM Poetry Partner bringing poetry & poem-making for many years to Sterling Maximum Security Prison in Sterling, CO."