Phoenix Soul

GIVEAWAY The Sjögren’s Syndrome Survival guide book! Hello Everybody.... The Online Support Group has grown to 300 people! How amazing is that? I want to keep this group growing. Why? Because I think there are many more Sjögren’s and Lupus patients that can benefit from having a peer to peer support group like this one; along with the resources from my associated website. I hope everyone has been able to ask questions and connect with others through this group. Peer to peer support is essential for those of us living with chronic illnesses like Lupus and Sjögren’s. I would like to host a giveaway for members of this group. There will be 3 ways you can enter the contest. Each action will gain you 1 entry (so you can get a max total of 3 entries). 1. Post below. Say ‘hi’ or give a 2. Invite a fellow Sjögren’s or Lupus patient to this group and tag them below (or invite anyone else you think might benefit from this group). 3. Sign up for the newsletter at www.PhoenixSoulWarrior.com (the associated website I have to support this group) Contest will run from now until end of day Tuesday February 23. I’ll announce the winner by late next week. Good luck!

Study reveals role of platelets in the development of lupus https://www.news-medical.net//Study-reveals-the-role-of-pl

Despite Everything I’ve Lost to Lupus, I’m Still Smiling. https://lupusnewstoday.com//15/loss-hair-voice-still-smil/

If you have Sjögren’s and live in the US, and are planning to get the COVID-19 vaccination, consider volunteering as part of this study. Contact info for the Sjögren's Foundation can be found below.

This article outlines how the medical industry has developed new guidelines for children on Plaquenil. This drug is often prescribed to children with Lupus and Sjögren’s. http://www.lupus.org//collaboration-and-communication-impr

This article highlights some of the things your doctor may not tell you when you get diagnosed with an autoimmune disease. While this article talked mainly about R. Arthritis, it’s applicable to any rheumatic disease. A good example they use is your mind may be up for a task, but your body may not be Check out the article here: https://www.webmd.com/rheumatoid-arthritis//ra-doctor-facts

What Is a Sjogren’s Antibody Test? And What to Expect When Undergoing This Test. ... https://www.verywellhealth.com/sjogrens-antibodies-5105025

This is interesting! Specific Protein in Tears May Better Diagnose Sjögren’s https://sjogrenssyndromenews.com//atg5-autophagy-protein-/

A good article if you want to see research related to fatigue in Sjögren’s. https://sjogrenssyndromenews.com//rslv-132-lowers-fatigue/

This a good article to share with family to help them understand how Sjogrens can impact the whole body. It focuses on oral manifestations from Sjögren’s. https://www.panaynews.net/cavities-and-oral-candida/

Resolve Therapeutics Publishes Positive Sjogren's Syndrome Clinical Trial Results "Up to 75% of pSS patients report profound fatigue as the most debilitating aspect of pSS, so we are pleased that RSLV-132 was able to significantly improve fatigue in this study," said James Posada, Ph.D., chief executive officer of Resolve Therapeutics. https://www.prnewswire.com//resolve-therapeutics-publishes

Venus Williams is at it again! Speaking out about her Sjögren’s Diagnosis, and inspiring others to take positive steps in their healing journey. This articles highlights a new Plant Based Protein Powder she just launched. I can’t wait to try it (I hope it comes to Canada!) https://www.onegreenplanet.org//venus-williams-launches-a/

Tia Smith doesn’t let lupus define her life http://www.thefamuanonline.com//tia-smith-doesnt-let-lupu/

A really good read for anyone with a Mixed Tissue Disease (Rheumatic Disease) That’s the thing about MCTD, it’s tricky. It’s a very rare auto-immune condition that is a combination of connective tissue diseases, such as lupus, rheumatoid arthritis, scleroderma, polymyositis, or dermatomyositis. http://nationalpainreport.com/someone-like-mixed-connective

There is a serious lack of knowledge in relation to Sjogren’s, she says. I’ve been sent to hospital numerous times and have never encountered a nurse who has even heard of it. Many doctors think it’s just dry eye and dry mouth and before I found my current rheumatologist, I had to bring a textbook on Sjogren’s to medical appointments to help me explain what I was going through. Have you gone through something similar? https://www.irishtimes.com//living-with-sjogren-s-syndrome

An interesting study, yielded opposite results than the hypothesized. Intermittent Fasting Aggravates Lupus Nephritis through Increasing Survival and Autophagy of Antibody Secreting Cells in MRL/lpr Mice https://www.mdpi.com/1422-0067/21/22/8477

Efficacy and safety of iguratimod on patients with primary Sjögren’s syndrome: a randomized, placebo-controlled clinical trial https://www.tandfonline.com//abs/10./03009742.2020.1809701

Even the strongest of Warriors fall down sometimes. I’m sick. Not Covid. Luckily. I caught a stomach flu and have been sick since yesterday afternoon. ... I got a nerve block done yesterday morning on a last minute emergency booking because of a major headache flare over the weekend. I’m miserable. I’m nauseous. I can’t eat. I’m weak. I’m going to try and take care of myself today. Rest. Fluids. Less screen time lots of ginger tea.