ARIVLE FILMS

June 9, 2020 marked nine years my mum died from PSP. Still this brain disease remains in the margins of public and medical awareness. If you have a loved one with any brain disorder, dementia, educate yourself about PSP. One if four Canadians are misdiagnosed as having Parkinson's, put on the wrong drugs and therapies. Do not know the swift and brutal path PSP will be taking them instead.

This will be my, my family's, 9th Christmas without our spearhead mum. Life still seems wrong without her. PSP was like a T-bone truck hit that just took her. Some say it's fortunate that it wasn't an actual car wreck, instant death, that we had time to say goodbye as she slowly declined. Both circumstances are tragic. Loss of one so close continues to grab at my throat in ways nothing else does. The sorrow is so profound I cannot put words to it. The tears just fall. ... I do like the magic and wonder of Christmas as it stirs thoughts of spiritual connection, nights especially with pure driven snow, the silence that allows, bulbs all a-glow. I conjure up the memories of how my mum made this time so exciting for me as a child. I consider she was younger than I am now what she did. At the end of her life she said "damn this PSP". Resigned, dignified. Her favourite carol was 'O Holy Night'. See more