Thyroid Federation International
P.O. Box 471 K0H 1G0 Bath, ON, Canada

What should you know about resistance to thyroid hormone? Also called Refetoff syndrome, it is a rare inherited condition characterized by reduced responsiveness to thyroid hormone due to mutations on the thyroid hormone receptor. Here is some info about it: 1. Patients usually have elevated thyroid hormones and a normal or elevated thyroid-stimulating hormone level. 2. The most well-known cause of the syndrome are mutations of the thyroid hormone receptor.* 3. Patients can p...resent with symptoms of hyperthyroidism or hypothyroidism. There can be various other symptoms even between members of the same family with the same mutation, with goiter and tachycardia being common symptoms.* Remember: Due to the nonspecific symptomatic presentation, patients can be easily misdiagnosed. Therefore, the diagnosis should involve identifying the mutation of the thyroid receptor.* *Rivas AM, Lado-Abeal J. Thyroid hormone resistance and its management. Proc (Bayl Univ Med Cent). 2016;29(2):209-211. doi:10.1080/08998280.2016.11929421 #thyroid #hypothyroid #hyperthyroid #underactivethyroid #overactivethyroid #raredisease #resistancetothyroidhormone #refetoffsyndrome #rarediseaseawareness

Graves orbitopathy, also known as Thyroid Eye Disease is an autoimmune disease, common in people with Graves’ disease, in which the eye muscles and fatty tissue behind the eye become inflamed. This inflammation can push the eyes forward (staring or bulging) or cause the eyes and eyelids to become red and swollen. Here is some info about it: 1. It occurs in as many as 25 to 50% of patients diagnosed with Graves' disease. It is more likely to appear in women.* 2. Symptoms: ...a foreign-body sensation in the eyes with pain or pressure in or behind the eye, and pain on moving the eye in any direction, blurring, swelling or redness around the eyes. 3. Risk factors: smoking is the most significant risk factor and the disease is more severe and less responsive to treatment in patients who smoke. Other risk factors: genetic factors and exposure to radioiodine (a treatment option for Graves disease).* If you notice any change in your vision or develop any new symptoms such as pain with eye movement, you should consult with your physician. It is important to get an early diagnosis and prompt treatment with the help of endocrinologists and ophthalmologists. *Fox TJ, Anastasopoulou C. Graves Orbitopathy. StatPearls. StatPearls Publishing. 2020. #thyroid #thyroideyedisease #TED #thyroidhealth #hyperthyroid #graves #gravesdisease See more

E-MPATHY study on hypothyroidism: only 3 weeks left to participate in the international patient survey! Share your experience! Aim: better understand hypothyroid patients’ experiences with their treatment and care. The survey is for all patients treated with thyroid hormones (underactive thyroid, or after thyroid surgery, or born without a thyroid). Link to the survey: https://bit.ly/2U3zfNJ... Available in English, French, German, Italian and Spanish. By answering the questions, you are participating in a research project, E-MPATHY STUDY, led by four international thyroid experts (Petros Perros - UK, László Hegeds - Denmark, Enrico Papini - Italy and Endre Nagy Hungary) and us, Thyroid Federation International, a global network of patient support organisations. The study wishes to understand patients’ experiences and their satisfaction with the treatment of hypothyroidism and to better identify unmet patient needs. The survey is anonymous, no personal information will be retained or distributed. Thank you in advance for your time! #hypothyroid #hypothyroidism #Hashimoto #hashimotosdisease #thyroidcancer #thyroidproblems #thyroidhealth #thyroidectomy

#WCTC4 In 2021, the World Congress on Thyroid Cancer, a multidisciplinary congress on thyroid nodules and thyroid cancer with specialists from all over the world, which was originally planned in Boston, will be entirely virtual, with 3 webinars on March 13, June 5 and October 16. The webinars will be presented by global leaders and specialists involved in the field of Thyroid Cancer. It will be of interest to surgeons, endocrinologists, nuclear medicine physicians, medical on...cologists, pathologists, radiologists and radiation oncologists, basic science researchers, epidemiologists, and allied specialists from all parts of the world. This unique format will include keynote addresses, panel discussions and Tumor Boards. Participants will have an opportunity to ask questions and have an opportunity to submit cases for discussion at Tumor Boards. http://thyroidworldcongress.com

Did you know that thyroid disease affects as many as 30 million Americans, and more than half remain undiagnosed? Learn more about the thyroid: https://bit.ly/39t6G3y #ThyroidAwarenessMonth #WeAreAACE

January is Thyroid Awareness Month: even in times of the COVID-19 pandemic, when our life is so busy with unprecedented tasks and worries, it is advised to regularly monitor our thyroid hormone levels. When preparing for your thyroid lab testing, stop taking biotin (a B vitamin taken to improve hair health) for at least 2-3 days before the testing to avoid the risk of causing false measurements of thyroid hormone lab results.* In these unprecedented times of the COVID-19, pay... attention to consume an adequate amount of food rich in vitamins (vitamin D, vitamin C, vitamin B) and minerals (zinc, selenium). *Katzman BM et al. Prevalence of biotin supplement usage in outpatients and plasma biotin concentrations in patients presenting to the emergency department. Clin Biochem. 2018. #thyroidhealth #bewell #behealthy #hypothyroid #underactivethyroid #hyperthyroid #overactivethyroid #thyroid #hashimotosdisease #vitamin #thyroidsurvivors #thyroidproblems #thyroidcancer #hypothyroidism #hyperthyroidism