Canadian Congenital Heart Alliance (CCHA)
3230 Yonge Street, Suite 2001 M4N 3P6 Toronto, ON, Canada

Check out the virtual family care camp/conference for families living with chronic illness (including CHD) and its free! https://bit.ly/NSR_FamilyCareConference

Saviez-vous qu' 1 bébé sur 100 naît avec une malformation cardiaque congénitale? Ce qui en fait la malformation congénitale la plus courante au monde. La malformation entraîne une cardiopathie congénitale (CHD) qui nécessite des soins cardiaques spécialisés à vie. Malgré les progrès monumentaux de la médecine, la cardiopathie congénitale ne peut pas être guérie, seulement réparée. En ce jour de la #JournéeMondialeduCoeur, sensibilisons-nous aux cardiopathies congénitales (CHD). Partagez cet article et visitez cchaforlife.org pour obtenir plus d'informations sur la vie avec une cardiopathie congénitale de la naissance à l'âge adulte. #SensibilisationCardiopathieCongénitale #1sur100 #utiliserlecoeur

Did you know that 1 in 100 babies are born with a congenital heart defect? That makes it the most common birth defect in the world. This defect results in congenital heart disease (CHD) which requires lifelong, specialized cardiac care; despite monumental advancements in medicine, CHD cannot be 'cured', only repaired. This #WorldHeartDay let's raise awareness about CHD. Share this post and visit cchaforlife.org to get more information on living with #CHD from birth through adulthood. #chdawareness #1in100 #UseHeart

A helpful 'back to school during #COVID19' fact sheet for parents of children returning to school - in class or virtual learning. #CHD

Today is the last day to register. This year’s Beat Retreat is going virtual! If you’ve wanted to attend in the past but travel or time off prevented you, this is a great opportunity to check it out. For more information or to register for this camp for this #ACHD camp, visit https://www.cchaforlife.org/2020-registration

We are looking for people to share their Fontan stories for a new Canadian Fontan registry and educational resource website, created by a Canadian CHD cardiology team. Stories from parents of Fontan children as well as teens and adults living with Fontan are welcome. If interested, email [email protected] and include Fontan story in subject line. Please share

CCHA and the Beat Retreat are happy to present our first ever Virtual camp experience. The Beat Retreat is an annual four-day retreat for adults (18+) living with congenital heart disease (CHD). The retreat provides campers with a valuable opportunity to build life-long friendships, share and learn from each other, and participate in a range of new and exciting activities. This year the Beat Retreat will be a virtual event, to help support the safety of all. There are only 50 spots available, and registration closes August 14, 2020. Spirit boxes will be mailed mid August. Click here to register now: https://www.cchaforlife.org/2020-registration

CCHA Advocates: MEDSKL has identified CCHA as being 'deeply involved with patient advocacy' and have asked us to help connect with adults, youth and parents of children living with CHD to invite them to participate in their new Patient Perspectives series, to share your experience with medical students across Canada, to provide information about your CHD condition, experiences moving through the healthcare system, tips for future physicians and general Q&A. MEDSKL is a free, open-access medical education platform that provides patients with a platform to engage in advocacy and teaching future physicians - as clinical skills teaching has halted due to the pandemic. MEDSKL volunteer form here https://docs.google.com//1FAIpQLSdUo-YgnHbvrah4yN/viewform

Wishing everyone a fun-filled, safe and very Happy Canada Day! Je souhaite à tous une fête du Canada amusante, sécuritaire et très heureuse! #CanadaDay

The Canadian Congenital Heart Alliance (CCHA) and The Beat Retreat Congenital Heart Camp are proud to announce that they have once again joined forces to support and deliver The Beat Retreat camp. The Beat Retreat was the first camp of its kind in North America for adults living with congenital heart disease. Read more https://www.cchaforlife.org/news/beat-retreat-back

CCHA Advocates: CCHA has been asked to help a McGill research study looking to recruit youth (13-21 yo) and parents (children age 5-15 yo) who had open heart surgery for their CHD before age two. Study is looking at developmental follow-up post surgery. Have your say about what you would like to see for developmental follow up post-surgery. #CHD #CHDResearch

A huge thank you to everyone who joined or donated to support Team CCHA in the 2020 virtual Walk of Life! Congrats on raising $4,705 so far. Donations can still be made until July 11, 2020. https://bit.ly/WOL2020TeamCCHA We so very much appreciate your support for CCHA and those living with #CHD.

2 days until the virtual Walk of Life! June 27th Join Team CCHA from anywhere in Canada and support those living with #CHD. Walk, run, bike or hike or any physical activity for at least 30 minutes. https://bit.ly/WOL2020TeamCCHA

Congratulations and welcome to our new and returning board members! Looking forward to a great year!

9 days until the Walk of Life! June 27th This year the walk is virtual. Choose to walk or run outdoors or on treadmill, go biking or hiking or any form of physical activity for at least 30 minutes. Join Team CCHA from anywhere in Canada to support those living with #CHD! Register today to make sure you get your T-shirt! Register: https://bit.ly/WOL2020TeamCCHA

CCHA in Research: CCHA is part of a national CHD research project to evaluate the effectiveness of providing resources and protocols to enable clinicians to counsel about physical activity as part of every pediatric cardiology appointment. https://www.contemporaryclinicaltrials.com//S1551-7144/pdf

Parents: How has COVID-19 affected your family? Fill out this survey from Statistics Canada.

The 36th annual Walk of Life is two weeks away! This year the walk has gone 'virtual'! This virtual walk provides a unique opportunity for you to join Team CCHA to walk or run in your home, on your treadmill or in your neighbourhood from anywhere in Canada! Choose to WALK for 1, 3 & 5KM, RUN for 5KM, or do some physical activity for at least 30 minutes. Have fun and fundraise for CCHA to support those living with CHD! For more information and to register: https://bit.ly/WOL2020TeamCCHA

Singer Amy Grant has successful surgery to repair recently diagnosed heart condition called partial anomalous pulmonary venous return (PAPVR). Wishing her a speedy recovery.

Deadline Extended to June 5. Put your time, talent and passion to work in helping support those living with CHD - apply today for our Board of Directors. We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of our organization. https://www.cchaforlife.org//2020-board-director-positions

Have you been yearning to put your time, talent and passion in the service of a great cause? Well, look no further! Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. Bring your skills and experience in social media, marketing, writing, organizational strategy and strategic thinking, project management or policy to CCHA. We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the organization. Deadline June 3, 2020 https://www.cchaforlife.org//2020-board-director-positions

Have you made a really delicious meal recently? Or perhaps you have a funny food story? Whether it's a tasty recipe or a kitchen fail, we want to hear all about it. And if you need some inspiration, click the link below to find meal planning ideas and healthy choices for breakfast, lunch, dinner...plus snacks! https://www.canada.ca//meal-planning-cooking-/recipes.html #funfriday #quarantinecooking