Katie's Crusade

Harley Davidson's Coins for Katie Oil Barrel:: IN LOVING MEMORY OF KATIE Kitchener Harley Davidson had set up this oil barrel two weeks before Katie's passing. to Help Katie and The Keeping Family with the enormous expense with their fight with Batten Disease. Since her passing Harley Davidson decided to keep this going in their store and re direct the funds in Loving Memory of Katie Amber Claire Keeping. to The BDSRA to help find a cure for Batten Disease . SO NO CHILD AND F...AMILY HAS TO GO THROUGH THIS : PLEASE HELP FILL THIS BARREL WITH SPARE COINS/CHANGE . Visit the Kitchener Harley Davidson for all your Harley Davidson needs and while in the store drop a coin in the barrel Thank you

Red Carpet Presentation To the Keeping family On CTV News for The memory and Memorial fund for Katie Amber Claire Keeping

Today Jan 28th 2015 At today's Service for Katie Amber Claire Keeping, A Teal Balloon Release took place in Memory of Katie and Batten Disease Awareness,

IN THE ARMS OF THE ANGEL, Dedicated to Katie Amber Claire Keeping My 10 year old Grand Daughter Keara Pressey, Poured her Heart out recording this CD that was played at the June 7th 2014 Katie Keeping Fundraiser.

CNN Interview with Gordon and Kristen Gray . Both daughters have Batten Disease please help and share . Gordon Gray is a Hollywood Producer (The Movie The Tooth Fairy) The Rock. Dwayne Johnston

I Hope You will all Support Our Rare Disease Day Event Tomorrow Sunday Feb 28 at Goodwill 79 Simcoe St. Tillsonburg Ontario: Bring The Kids out for a fun few hours:and Great Prizes: The Weather looks Awesome for Tommorrow so come get out of the house and shake off the winter blues:1 Pm B;ow Bubbles , followed by balloon release and then Prize Draws :: Just Drop any spare change into the oil Barrel for your ticket on the draws :: Hope to see you there . I Hope You will all Sup...port Our Rare Disease Day Event Tomorrow Sunday Feb 28 at Goodwill 79 Simcoe St. Tillsonburg Ontario: Bring The Kids out for a fun few hours:and Great Prizes: The Weather looks Awesome for Tomorrow so come get out of the house and shake off the winter blues:1 Pm B;ow Bubbles , followed by balloon release and then Prize Draws :: Just Drop any spare change into the oil Barrel for your ticket on the draws :: Hope to see you there . See more

Early Spring Cleaning ??? Want to get rid of pop cans you have been storing up all winter ?? I collect pop cans, beer Bottles wine and liquor bottles for a Family in London who has a 7 year old Girl (Mei) fighting a rare disease that is 100 percent Fatal Message me for more information and or pick up :: Or Bring them to The Goodwill Store at 79Simcoe Street Tillsonburg Ontario to our rare disease Day Event . I will have well over $2,500.00 worth of prizes to draw for . Just for putting any amount of a donation into The Harley Davidson Oil Barrel Locate in the Goodwill store for the next week: ..( To Be included in the draws you need to put Donation in Barrel On Sunday Feb 28th at our display for rare diseases ) in Goodwill Check out these pics to see a small potion of the draw prizes One Balloon released will be in Memory of Katie

Rare Diseases Day Event at The Goodwill Store , 79 Simcoe Street Tillsonburg Ontario .Feb 28 2016 at 1 pm . If You are in Tillsonburg or SW Ontario or anywhere Please Share this Video.On Your facebook. I wish to Thank all The Business people of Tillsonburg and their Employees who donated Prizes to this event. The Prizes shown in this video are only a fraction of what will be given away with more to come. Feb 28, Just drop spare change or any donation in the Harley Barrel, for... Batten Disease Research and get a chance to win one of the dozens and dozens of prizes. I hope the people of Tillsonburg will come out for this Bubble Blowing/ Balloon Release Event To Let (The voice of rare Disease Be heard ) Contact me here or by email or phone if you have any questions..Contact Info is on my poster. I wish i could have included all The children and adults with batten Disease or all the diseases. See more

Please Support Rare Disease day: My Presentation to The Tillsonburg Town Council For Our Rare Disease day Event February 28,2016 At The Goodwill Store in Tillsonburg Ontario: Some of the rare disease we support although we support all rare diseases: Batten Disease Epidermolysis bullosa Spinal muscular atrophy... childhood leukemia Mitochondrial Leighs Syndrome Deb Mitchell Gouin Natalie Campbell, Donna Lockyer-Keeping, Donna Lesniak, Terrie Rhoden, Donya J. Catlett, Pamela Cameron, David Alsemgeest, Alan McBride See more

Please Help and please share Treena Nauman Status This will help all kids with Batten disease past present and future. Treena Nauman 2 years ago KHD was racking off a BBQ to help Katie keeping and her family. A lot has happened since then. Earlier this year, Katie's battle with Battens Disease came to an end but she left a little piece of her behind with all of us. She was a very special girl. Now KHD has an oil drum on our showroom floor that we are trying to fill up with change so that we can continue to support the fight for Battens Disease.