Scleroderma Association of British Columbia

How do people with #arthritis balance sleep, activity and rest over 24 hours? Check out this research by Dr. Lynne Feehan from UBC Department of Physical Therap...y, and in collaboration with Arthritis Research Canada scientists and patient advisors. The findings from this study may help healthcare providers tailor interventions for people living with different forms of arthritis. #ArthritisResearch Watch below and learn more here: http://ow.ly/u9cK50Dg9Kt

For those who are Facebook friends of our wonderful board member Patricia Thomasson Diggle, especially if you have FB messenger... her account was hacked. Please delete, without opening, any messages that appear to be from her.

In conjunction with our post of today's provincial news conference, here are screen-captured photos of the phases of the proposed plans, and a photo generally outlining those groups considered as 'vulnerable'. (Please note, we are unable to answer specific questions regarding individuals' particular situations.)

Here is the full video of today's important provincial news conference regarding BC's Covid vaccination initiative. Update: The Vancouver Sun's article on this subject is in the Comments section. https://globalnews.ca//watch-b-c-s-daily-coronavirus-upda/

https://arthritis.ca//pain-man/assistive-devices-resource

Looking for some bold scleroderma merchandise this holiday season? Make a statement and spread awareness with hoodies, t-shirts and tank tops designed by a scleroderma warrior, our friend The Autoimmune Slayer. Shop: https://theautoimmuneslayer.com/collections/merchandise

Sjögren's is a systemic autoimmune disease that affects the entire body. Along with symptoms of extensive dryness, other serious complications include profound ...fatigue, chronic pain, major organ involvement, neuropathies and lymphomas. There is no one single progression of the disease and while some people experience mild discomfort, others suffer debilitating symptoms that greatly impair their functioning. Early diagnosis and proper treatments are important as they may prevent serious complications and greatly improve a patient's quality of life. We encourage you to share this on your page to raise awareness of Sjögren's & click on the link below to learn more about this complex disease. https://www.sjogrens.org/understanding-sjogrens

Queen Latifa on the Today show talking about the documentary Beyond Breathless (it aired this morning on A&E), raising awareness about Scleroderma and Interstitial lung disease.

Our FB admins Robyn and Jackie are getting together via Zoom today with some of our favourite people, and to introduce ourselves to our wonderful new Board members. Beth is one of them! Here's her inspiring story. https://sclerodermabc.ca/temoignages/beths-story/#more-10286

This should be a good watch, I’ve set my PVR

If you qualify for the CPP Disability tax credit, this one-time Covid credit seems to be coming through to folks. https://www.canada.ca//one-time-payment-persons-disabiliti

The SABC has been supporting this study since its inception (see earlier post for full update) and some of the initial results may hold promise for those living with idiopathic pulmonary fibrosis and scleroderma lung involvement! Here is their new Facebook page. We hope you will sign up to Like and Follow this wonderful team of researchers, follow their progress, and show your support! @SABCResearch

"Learning to Love Our Friend--The Gut" Scleroderma Virtual University Webinar, October 7, 3 - 4 p.m. Eastern (2 Central, 1 Mountain, 12 Pacific), with Lesley A...nn Saketkoo, M.D., M.P.H., Tulane University School of Medicine REGISTER at: www.scleroderma.org/SFuniversity Love requires time, attention, tenderness, patience, gratitude, some sacrifice...and acceptance. This workshop will focus on scientifically based kindness strategies to befriend the gut by enhancing food tolerance and augmenting nutrition; while considering prevention and management strategies to reduce scleroderma related GI symptoms and complications. With the ultimate goal of improving freedom and quality of life.

Hi friends! Please follow our research team on Twitter! Check out the link below.

Reminder! Parents of Children with Scleroderma Online Support Group Meets tomorrow night Oct. 7 from 7:30 - 9PM. Register: https://rb.gy/kriobr #scleroderma #sc...lerodermasefl #sclerodermasupport #sclerodermaawareness #sclerodermawarrior #autoimmunedisease #sclerodermaparents See more

Check out our latest SPIN Spotlight featuring rheumatologist Dr. Laura Hummers, Co-Director of the Johns Hopkins Rheumatology #Scleroderma Center and new member... of SPIN's Steering Committee! -- Consultez notre nouveau SPIN Spotlight présentant Dre Laura Hummers, Rhumatologue et co-directrice du Centre de #sclérodermie Johns Hopkins et nouvellement membre du comité de pilotage SPIN.

Thank you to Deputy Premier, Minister of Health Christine Elliott for providing opening comments and welcoming guests to the 2020 National Scleroderma Conference. Please watch her opening remarks below.

Did you know that the SABC has been supporting a promising research project, thanks to the support of our donors? We are delighted to provide this update. Please acknowledge the wonderful work being done by our research partners by "liking" our post! *********************** Scleroderma Association of BC Research Project Update Fall 2020 The aim of the SABC Genome Research Project is to identify biomarkers specific to people who have pulmonary fibrosis caused by systemic sc...Continue reading

What are some adaptive tools you use to help make daily tasks easier?

More helpful devices coming available. Thank you

With appreciation for everyone who has participated in studies and trials.

Tremendous accomplishment!

"Learning to Love Our Friend--The Gut" WEBINAR, Scleroderma Virtual University October 7, 3 - 4 p.m. Eastern (2 Central, 1 Mountain, 12 Pacific) With Lesley An...n Saketkoo, M.D., M.P.H., Tulane University School of Medicine REGISTER at www.scleroderma.org/SFuniversity Love requires time, attention, tenderness, patience, gratitude, some sacrifice...and acceptance. This workshop will focus on scientifically based kindness strategies to befriend the gut by enhancing food tolerance and augmenting nutrition; while considering prevention and management strategies to reduce scleroderma related GI symptoms and complications. With the ultimate goal of improving freedom and quality of life. See more

Knowledge is power, thank you Queen Latifa

Thanks to all who submitted their #COVID19 fears in March and participated in the SPIN-COVID-19 Study in April! SPIN’s COVID-19 Fears Questionnaire has been pub...lished. Check out our research infographic for a summary of results. To read more, access the article free-of-charge here: https://www.sciencedirect.com//artic/pii/S0022399920308333 -- Merci à tous ceux et celles qui ont répondu à notre appel de mars dernier et qui ont soumis leurs craintes liées à la COVID-19, ainsi qu'à tous ceux et celles qui ont participé à l'étude SPIN-COVID-19 en avril ! Le questionnaire SPIN-COVID-19 sur les craintes vient d'être publié. Consultez notre fiche infographique pour un aperçu des résultats. Pour en savoir plus, accédez gratuitement à l'article ici (disponible en anglais seulement) : https://www.sciencedirect.com//artic/pii/S0022399920308333 Thanks to all of the funding bodies and wonderful patient organizations who supported this effort! / Merci à tous les organismes subventionnaires et aux merveilleuses organisations de patients qui ont soutenu cet effort ! Canadian Institutes of Health Research, Arthritis Society, Lady Davis Institute for Medical Research, Fondation de l'HGJ - JGH Foundation, MI4 McGill University Interdisciplinary Initiative in Infection and Immunity Emergency COVID-19 Research Fund, McGill University, Jewish General Hospital, Boehringer Ingelheim, Scleroderma Canada, Scleroderma Society of Ontario, Sclérodermie Québec, Scleroderma Association of Saskatchewan, Scleroderma Manitoba, Scleroderma Association of British Columbia, Scleroderma Atlantic, Scleroderma Australia, Scleroderma Association of NSW, Scleroderma Victoria, Scleroderma Queensland

Dr Robinson has had an interest in scleroderma, as well.

This beautiful verse was written by Laura Ding-Edwards and you can find her work at Rainbird Roots Do pop over for more inspiring verse. Isn't it ...beautiful. She has a gift with words. You can purchase your own card here :) https://www.facebook.com//a.64596005886/2005264592930392/ See more

We will be posting video of tomorrow's wonderful speakers in case you aren't available to Zoom with us!

Hi all! If you've registered for our free conference, please check your inbox for an email from Jeff Gammon. It has everything you need to Zoom along with us tomorrow morning including the documents for our annual meeting. Check your 'updates' or 'spam' folders if it hasn't come into your primary folder. If you've registered and haven't received your conference link, please email Jeff: [email protected]

Time is running out to register for the Scleroderma Manitoba Education Conference on Saturday Oct.3rd 10 am start- only today and tomorrow. Don't miss Dr. Janet... Pope's keynote presentation or our expert panel: Dr. Ada Man, Dr. Sabrina Hoa and Dr. David Robinson join Dr. Pope to talk about the HOPE that research brings to patients. Q&A too! Scroll down to the Canada Helps link to register NOW. Register by phone at 204 417 6017. #hopeforsclero See more

Scleroderma Canada is looking forward to seeing all who have signed up for next week's Conference. We hope this unique virtual event will give you hope, courage, and new tools for the future. If you have not done so already, register at www.sclerodermaconference.ca